Life Box

Sending a Life Box to Pakistan.

Support people affected by the floods in Pakistan. This is something most people can do, these are items we can pick up during a regular shopping trip, we have priced the boxes here at around £8 a box, if you can please send a box or get together with a group of friends to send a box or boxes. ”Pakistan International Airlines has offered its support to the humanitarian aid effort to ensure that basic food and medical supplies reach Pakistan. They are asking members of the public to send gift aid boxes which they will transport to Pakistan free of charge on the next available flight. Unprecedented floods in the history of Pakistan have caused displacement of at least 20 million men, women & children. These people are stranded without food, water and shelter. Our first priority must be to provide them food & water in the most efficient & expeditious manner possible.” PIA has developed a Life Box which will provide high energy food & liquids to sustain a four member family / group for 2-3 days each.

Here is a list of what needs to be included: http://www.piac.com.pk/Flood_Relief/contents.html

CONTENTS
  • 2 x Bottles water (1.5 Litres)
  • 2 x Six pack of juices (250 ml)
  • 3 x High energy packets biscuits.
  • 1 x Milk Pack (1 Litre)
  • 1 x Packet of dates
  • 2 x Anti Septic Soap Bars
  • 1 x Pack of paper cups
  • 6 x Sachets of ORS (Oral Rehydration Salts)
  • 1 x Box of chocolates.

I am aware that lots of these foods are the kind of foods that many of us do not eat and would not recommend others eat, but I have thought lots about this and in my humble opinion, this is a time for people to eat many of these foods. Someone living in an extreme survival situation eating crisps, salty and sweet biscuits will be needing the calories and energy and burning it off straight away, these foods will be unlikely to cause problems to people starving who eat them for a few days. People who are not in these situation and eat these foods day in day out will face health problems from them but that isn’t the case here.

We have found a crisp/potato chips box is aprox. the best size – to save you spending ages with a ruler! And we have all asked for free boxes from supermarkets and they give them away. If you can’t find say 1 box of salty biscuits include two packets etc

Collection & Help Desks have been created at all stations in the PIA network to facilitate donors. PIA’s Emergency Response Centre is working 24/7 to maintain close liaison with all stations to streamline logistics.

Here are the collection points for the UK: http://www.piac.com.pk/flood_relief/Guidelines4UK.htm

Here is the international list inc. USA: http://www.piac.com.pk/Flood_Relief/ERP.htm

Call your local airport and ask for PIA and ask them the nearest drop off point. Also bear in mind many mosques are co-ordinating the boxes to the airports locally. We dropped our box off to a friend who took it to her mosque, which has also been offering collection locally and the boxes were taken to the airport in vans in bulk. Over 350 went off from this community alone. Well done everyone!

We all send love and reiki and prayers too.

with all love, thanks for reading and support to all those affected by the floods,

Grace and Linus xxxxxxxxxxxxxx

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Love List-ing

Good Afternoon!

How are you?

I love so many things we are blessed and our lives overflow with love, here is just a smattering of joy…

I know I haven’t blogged for ages, if it counts I have had tons of blog ideas and wanted to write loads but they haven’t got to the screen. If you are reading and you like this please feel free to subscribe – you can click the box when you leave a comment and wordpress will helpfully email you when I post! Which is a) lovely and b) hopefully will happen more often soon :-) if you would like to read what I have been writing visit me at http://basicmissions.com/?page_id=206

So inspired by the Love Lists of Kris Carr at crazysexylife.com. I wanted belatedly to make one of my own…..

Image Credit: Linus

1. My lush new cowboy boots on sale from bourgeois boheme http://www.bboheme.com/

Image Credit. Linus

2. Linus’s cool photos :-)

3. The Water Ioniser. Our lovely new water ioniser, we love it and its anti inflammatory properties and we love everyone at http://theofficialwaterionizer.com. Image belongs to them. Its just here because we love it and want to share that with you.

4. The newest Ning on the web, http://basicmissionslife.ning.com/ come and see and join, I LOVE it here.

“Hello all. Just wanted to let you know that BasicMissionsLife.ning.com is now up and running a playground for the grounded and spiritual person. I hope this place to be a place where people come to share knowledge on life and hope for the future. If your healing drop by and share what works and what doesn’t and over the next week or so it will get much more professional and more BasicMissions like. I want you to know if you have a conversation to start just head over to forum and get started. I look forward to my vision of this space to open like a lotus flower and I look forward to learning from all of you. I cannot wait to see it turn into what is in my mind. So take a minute and come on over and join  this bodaciously bawdy community of worshipers of all things God, and let’s experience life together all of it the good the bad and the ugly and if you get a chance pay forward some of your blessings. I will have the community rules up no money is to ever be asked for or exchanged no ugliness and respect everyones journey. I hope you don’t judge and learn. So here we come ning on our shakey little legs like five year olds entering the classroom for the first time.

Help us grow. And get to know yourself a little. http:www.BasicMissionsLife.ning.com hugs Callie,Duncan,Grace, Linus and Saatchi and Bertie.” basicmissions.com

Image Credit: dan/ http://www.freedigitalphotos.net/images/view_photog.php?photogid=587

5. Sunshine. So it is Autumn coming and it is lovely and if you want to know my feelings and excitement about it see Friday’s Prayer: Into the Night of the World on basicmissions.com. However, the grey damp weather is hard on my aches and pains and the SAD and so the sunshine is so welcome and I love it. Plus our garden, what a miracle is getting adapted and sunshine gives me hope that I will get out there and get some veg growing this summer still.

Image Credit: Simon Howden http://www.freedigitalphotos.net/images/view_photog.php?photogid=404

6. Growing our own sprouts. We are growing buckwheat lettuce, pea sprouts, sunflower greens, alfalfa sprouts, mung bean sprouts, sunflower sprouts and I am currently enjoying carob sprouted almond mylk linus just made as I am doing this! We love sprouts, indoor or semi – out door (a stand by the back door) gardening and healthy cheap organic greens.

Image Credit: Suat Eman http://www.freedigitalphotos.net/images/view_photog.php?photogid=151

7. Harvest. Sticking to the growing things love theme, my next love list item is all the abundant fruit and veg avaliable at the moment and all that people are kindly giving to us. We love you. By the way I’m sorry lots of these images are not my own, I have some lovely pictures of harvest veg but they are still on the camera but will be coming to this blog soon soon. Yes, we have had lovely plums, courgettes, apples, pears, swiss chard and marrows. Thank you every one and yum yum from us. Pop over to http://basicmissionslife.ning.com we have some great info and discussions up on growing your own and preserving and using gluts of fruit and vegetables. We had plums dried in the dehydrator and are planning crisps this weekend from the marrows, raw vegan salt and vinegar ( pink salt and apple cyder vinegar) in the dehydrator. Fun fun.

Image Credit: ahmet guler http://www.freedigitalphotos.net/images/view_photog.php?photogid=1039

8. The wonderful full body massage L bought me as a surprise gift. I thought I was going for a medical appointment and then massage bliss. Thank you and Love you my beloved.

Image Credit: Graeme Weatherston http://www.freedigitalphotos.net/images/view_photog.php?photogid=330

9. Post! Owl post. We love owl post and I love all the lovely letters, we love comments and emails but true real letters and writing paper and stamps post is so special too. Thank you for all my lovely post, it is one of my favorite things ever! I was reading and replying to a lovely letter today, it makes me warm inside and joyful. Hope you have warm joy today too.

Image Credit: Felixco, Inc. http://www.freedigitalphotos.net/images/view_photog.php?photogid=1012

10. YOU. I love you for being you, reading my blog, taking the time to visit my tiny cherished corner of cyberspace and reading my list and hopefully making your own in some way, shape or form. Thank you to all our treasured friends and family who are love lists themselves. We love you.

Thank you for visiting, hope you had fun and come again,

love and snoozles,

Grace xxxxxxx

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My Soul Collage or “made with love and glue. Way too much glue”

Good Afternoon,

It is cloudy here today. Yesterday we had thunder! My head is all snoozy but I have been listening to Harry Potter audio books and so the gentle activities with plenty of rest helps. Just briefly today as energy has mainly been spent on 1. my book 2. working on healing boxes charity being officially set up 3. managing being ill / pain/ day to day living etc. More news on 1 and 2 when I have it!

I made lovely soul journal cards. It was very peaceful and enjoyable. These are just cards they have not grown into part of a deck yet. I am enjoying working right now with just the images and my changing relationship, associations and enjoyment of them and what they express. I usually work mainly with words even on vision cards and boards etc I have words with my pictures or associated journalling and stories so this is new for me and I am exploring it.

Here are the cards!

soul collage 1 by Grace

Soulcollage 2 by Grace

Soulcollage 3 by Grace

They are quite rough but I do the best I can rather than holding off for a perfection I may never achieve as it may not be real. I enjoyed making them and I like looking at them now :-)

for more soulcollage info: http://collagediva.typepad.com/truenorth/2010/07/partyideas.html

blog party blog hop link:

<script src=”http://www.linkytools.com/basic_linky_include.aspx?id=37331″ type=”text/javascript” ></script>

love and best wishes and healing hopes to you

Please come over to Basic Missions at http://basicmissions.com/?page_id=206 and enjoy our Friday meditation and all Callie and Duncans fantastic work!

Thanks for reading!

lots of love, Grace xxxxxxxxxxxxxx

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Forest of Dean!

Holiday pictures:

We went to Symonds Yat Rock and saw peregrine falcons and a buzzard soaring :-)

We had a lovely tent in the forest

We rested under the trees and had gentle adapted yoga with the sunset, blissful

under the copper beeches…..

amazing sunsets, no hills like in wales so such big skies and skyscape views! 

sweet bertie dog :-)

We went to the fab scultpure trail. http://www.forestofdean-sculpture.org.uk/

There were some problems, they said it was wheelchair accessable and we found it truly wasn’t. So they kindly drove us around it and are changing the website and leaflets. It may be suitable for powerchairs but not for me! I hope it is made truly accessable one day soon….

this lovely lady from the forestry commission Judith took us around :-)

these are carved railroad sleepers…

I love this one, a hugs fir cone and cup sculpture. there are sculptures scattered through the forest, some are not marked on the map, secret ones people just come across…

This sculpture is an echo of the old stone quarry behind it. Some of the pictures are far away as they were taken from the car, I wasn’t well enough to get out of the car for them all and not all there accessable anyway, we got to see lots of them though.

This is my favorite! The Cathedral! A huge stained glass window showing scenes from the Forest. Its just in the middle of the trees. Magical

this picture is for scale. that is linus and bertie underneath! even we didn’t realise how big it was before we saw this photo, the scale is lost in the scale of the forest but wow it is massive and gorgeous

and on the way home I painted a vase at Taurus Crafts. It arrived in the post today after being fired and glazed. Tommorrow a friend is coming over to help me and I am looking forward to her picking some flowers to go in it from the hedge next to our house, I think some honeysuckle would be beautiful there!

It was a fabulous holiday, I can’t say that some of the illness/ pain/ access disabilitty stuff wasn’t tough and challening as it was but we loved it. An amazing time, living a dream of sleeping in the woods, relaxing and returning to a de cluttered home ( see http://basicmissions.com/?page_id=206 appreciate and be free)

We are looking forward to going again and resting lots to recover from this trip

Tons of love and thanks for reading, see you soon and over at basicmissions.com

all love, Grace and Linus xxxxxxxxxxxxxxxxxxxxx

All words and pictures property of Grace and Linus

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Holidays, Healing, Collages and Creating

Hello to lovely you there,

Wonderful blogging fun, writing energy has been going towards my page on the wonderful www.basicmissions.com. Please visit my page ‘Grace’ there for info and inspiration on dressing for success when healing, appreciating all the healing good in your life…forget ‘To-Do Lists’, terribly old hat, it is all about ‘Done’ lists now! Also manifesting and a meditation written by the wonderful Linus, my darling true love.

Also we have been on holiday! Yes, first holiday in 8 years, it was wonderful. I can’t say that the accessability/ illness issues were tough at times. Although it was just nice to rest and to well, as I am ill it is nice to have a new view to look at and new surroundings during it…hope that makes some sense!  Holiday pictures will be posted soon…

I am excitedly taking part in the SoulCollage® Blog Party at True North Arts.

Click here to find out more and join in the Fun!

http://bit.ly/soulcollageblogparty

Looking forward to posting some soulcollage loveliness soon.

Love and healing hopes,

Grace and Linus xxxxxxxxxxxxxx

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Basic Missions

I am writing over at the ever fabulous Basic Missions www.basicmissions.com

Come on over and and meet me on my page ‘Grace’. Look forward to seeing you there! I am so super excited to be part of such a lovely healing hub.

With love, Grace and Linus xxxxxxxx

by Grace

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Refugee Week

The Amnesty International newsletter came in the post the other day (yay posty!) and I was flicking through it looking for little articles or bits of easy text for me to read as brainfog prohibits most articles, actually am almost 100% on audiobooks at the moment, grrr, anyway, and I came across a lovely little piece about refugee week. Refugee Week in the Uk in this week, the 14- 20th June. It is a program of events which look at the experiences of exile and refugees and their contribution to the UK. Asylum seekers are often faced with hostility from people’s pre – conceptions, fear based prejudices and misinformation and understanding.

Refugee Week 14 – 20 June 2010

Different pasts, shared future

Simple Acts

The article in Amnesty newsletter highlighted the Simple Acts, which is about inspiring individuals to use small everyday actions to change perception of refugees. I thought I can do that! They suggest 20 actions, you just choose an action, do it and tell them you have done it at: http://www.refugeeweek.org.uk/simple-acts

I share with you here the simple acts we are choosing and invite you to join us in one (or more) this week or visit www.simpleacts.org.uk and pick your own. Words and text from the Simple Acts site.

We are going to:

1. Cook a dish from another country

1. Cook a dish from another country

Has it ever occurred to you that there might be some “refugees” in your fridge?

Garlic, for example, originally came from Central Asia and was frowned upon by the Americans until as recently as the 1940s. Our old friend the tomato is in fact a native of South America, and was greeted with suspicion by the British because they thought it was poisonous. Even the lowly potato has roots in the mountains of South America, and was for a long time snubbed by Europeans because they considered it to be the food of the underclass.

When you think about it, almost any dish you care to imagine includes ingredients that come from somewhere else. Just imagine how much less tasty our lives would be if these foods had stayed at home?

So, why not welcome new ingredients and dishes into your kitchen? Instead of frowning upon lesser known vegetables and sticking to a meat-and-two-veg routine, go adventurous and explore the world – one dish at a time. You might even discover a future tomato or potato.

We are having pesto mushrooms, yay italy!

5. Say a little prayer for me

When a butterfly flaps its wings, it makes a tiny change in the atmosphere, which in turn can change the path of a tornado or a big wave. This is the so-called Chaos Theory, which describes how small events can influence big events.

Now, if we apply this theory to human beings it works like this:

You say a prayer for refugees. In prayer you use your imagination to put yourself in their place. This experience creates a tiny change in you, which in turn creates changes in those close to you, which in turn sets off a wave of change coming from within your community and affecting the way others perceive refugees

PS.

As for the Chaos theory, Richard DeDomenici flapped his wings in New York and called coast guards in Japan to check if there were any changes in the weather. They declared no changes, which only proves that inter-connectedness of things lies beyond our rational explanations and understanding, or that the guards were too busy playing Solitaire on their PCs.

Some thoughts…

Words lead to deeds …
they prepare the soul, make it ready, move it to tenderness.

Saint Teresa

Let the beauty we love be what we do.
There are hundreds of ways to kneel and kiss the ground.

Jelaluddin Rumi

My actions are my only true belongings.
I cannot escape the consequences of my actions.
My actions are the ground on which I stand.

Buddha

It is of course possible to dance a prayer.

Glade Byron Addams

We are praying and lighting prayer candles, please join us in a prayer wave this week 9.30pm your time for all refugees and those seeking asylum and in exile. This is open to all people of all faiths and if you just want to send good wishes and thoughts rather than prayers if you do not pray that is great too. Thank you.

6. Read a book about exile

Reading about exile is not the first thing that springs to mind when you’re looking for some light entertainment on a Tuesday evening. And rightly so.

For books about exile will do exactly the opposite. They will move and unsettle you; challenge you to leave the comfort of your old convictions and permanently change both you and your Tuesday.

They will not necessarily tell you the things you want to hear, but the ones you don’t; the necessary things that can’t remain unsaid. They might scare the life out of you. Make you witness some heartbreaking moments which lie beyond our language, comprehension and humanity. They might introduce you to strange characters, customs, and places. Make fun of your culture and your language. And make you feel, as something grand begins to collapse in you, that a hand has come out and taken your own.

Sounds tough and unsettling? Yes, and isn’t that precisely what good books are for?

I will be listening to Benjamin Zephaniah’s book Refugee Boy, in audiobook form. Downloaded from the lovely Listening Books http://www.listening-books.org.uk/

book here: http://www.amazon.co.uk/Refugee-Boy-Benjamin-Zephaniah/dp/0747550867 I would also recommend: You can’t drown the fire: latin american women writing in exile ed. Alicia Partnoyhttp://www.amazon.com/You-Cant-Drown-Fire-American/dp/0939416174 and A Map of Hope: Women’s writing on human rights ed. Marjorie Agosin http://www.amazon.com/Map-Hope-Womens-Writing-Rights/dp/0813526264

8. Find five facts about refugees

8. Find five facts about refugees

Everyone likes silly stories and jokes but people just don’t take you seriously until you provide them with facts.

Having facts at hand is particularly useful when talking about refugees because there is so much nonsense and misinformation going around.

So, here is a whole bunch of facts that might surprise you, and also make you look in the know.

A refugee is someone who has fled to another country seeking protection from war or persecution. An economic migrant is someone who has moved to another country to work.

Under the 1951 UN Refugee Convention people have the right to apply for protection in the UK.

In Leicester alone, over 30 000 jobs have been created by Ugandan Asian refugees since the 1970s

11 refugees from the UK have won Nobel Prize for science

Asylum seekers account for only 3% of net immigration to the UK.

Almost a third of refugees have contributed to society by doing voluntary work since arriving in the UK.

Many refugees have academic or teaching qualifications. There are more than 1,500 refugee teachers in England.

The UK hosts 2% of the world’s 10 million refugees.

More than 1,100 medically qualified refugees are recorded on the British Medical Association’s database. It only costs £10,000 to prepare a refugee doctor to practise in the UK. It costs £250,000 to train a doctor from scratch.

Estimates of the UK’s refugee population suggest that it only amounts to 0.6% of the total UK population.

Under the 1951 UN Refugee Convention people have the right to apply for protection in the UK.

A refugee is someone who has fled to another country seeking protection from war or persecution. An economic migrant is someone who has moved to another country to work.

9. Find out who you REALLY are

9. Find out who you REALLY are

Who would have thought that the origin of an English word about good breeding, lineage and ancestry would be a French bird with big feet?

Apparently, the English word “pedigree” comes from the French ‘pied de grue’ or ‘foot of the crane’, probably because a simply drawn family tree looks a bit like the foot of a bird.

So what about you and me? If we traced back our line to its beginnings, would we find a big-footed French bird or something equally as unexpected and entertaining? Ask Boris Johnson, the Mayor of London, who traced back his family’s roots and discovered himself to be a descendant of a Turkish refugee!

The history of your family is a great mystery and, like all great mysteries, there are plenty of surprises to be had.

THIS IS OUR SIMPLE ACT OF THE MONTH!

A few ways to find out a bit more about who you are:

ask your grandparents to tell you about your family

Such wonderful thing to do, our background and pastory can inform who we are today and often elders are not respected enough in our societies, ask and find out. Who were your great grandparents, your great great grandparents, where were they from, what were their stories?

look up the meaning of your surname

This was fun too, my surname wasn’t recorded on any of the websites, they said it was too unusual but my mothers is and it is an irish surname as I knew, it means son of the sea man (settlement by the sea)! Wow!

go to see a palm reader lol

go to a genealogy website

11. Smile :O)

Smiling is contagious.

To test this, next time you leave your house smile at a stranger and you’ll see that stranger will smile at another stranger. Very soon the whole street will be smiling.

It’s a little like sending one of those chain e-mails that everyone has to forward to five friends. Except it’s not an e-mail, it’s a smile-mail.

So, if you want to make a refugee smile, you can send them a smile via the smile-mail and be sure they are going to get it sooner or later. The main effect is that they will feel welcome; while the side effect is that your whole street will be grinning in the process.

How to smile

Sometimes it’s good to go back to basics, so here’s a few tips on beaming.

Enjoy smiling

Some people are a bit nervous of smiling. They think it makes them look unattractive, shows off spinach in their teeth or just makes them look like a bit of a maniac. Deal with it. Smiling doesn’t make you look ugly – it makes others feel good, which makes you look gorgeous! And even if you do have spinach in your teeth – that’s bound to make someone else smile back.

Think of happy happy joy joy things

It’s sometimes difficult to smile when you’re walking around with a little black cloud over your head. Luckily, when you’re feeling down, smiling can help cheer you up, even if you have to coax a smile out at first. The best way to do this is to think of happy things. Has anything ever made you laugh so much that you nearly peed yourself? What was it? Remember it. Go on. Where was it?

See you’re smiling.

Smile with your eyes

Ever seen someone smile with their mouth but not their eyes? Scary isn’t it.

Smiling with your eyes is the key to a genuine, warm smile. You can’t really explain how to do it- your cheekbones lift slightly and your eyebrows dip a little. But when you see it, you know it: it’s that look of your eyes “lighting up” or “twinkling.”

12. Learn to say a few things in a new language

Scientists have discovered that learning just a few phrases in a new language can improve how you speak your own.

People who learn new languages are also better at things like maths, art, higher level thinking, reasoning and problem solving. Phew!

However, we think that the best thing about learning to speak a few sentences of another language is that it opens up the world of opportunity, possibility and chance encounters. Think about it like this: if there are 5,000 people in the UK who speak Bosnian, by learning to say “how are you today?” or “want to dance?” in Bosnian you increase the number of new friends you could make to 5,000, not to mention the number of potential partners you could meet, invitations to Halloween parties you might receive or birthday cards you could send.

To start with, here’s how to say ‘Hello’ in 3 different languages:

Somali:

Helo (that’s an easy one)

Arabic:

Mar ha ba

Mandarin:

Ni Hao

Hello (in 44 different languages!)

  • Arabic: Al salaam a’ alaykum
  • Armenian: Barev
  • Bulgarian: Zdraviete
  • Cantonese: Nei Hou
  • Croation: Bok
  • Czech: Dobry den
  • Danish: Goddag
  • Dutch: Hallo
  • Estonian: Tere
  • Finnish: Terve
  • French : Bonjour
  • German : Guten tag
  • Greek : Kalimera
  • Hawaiin: Aloha
  • Hebrew: Shalom
  • Hindu : Namaste
  • Hungarian : Szia
  • Icelandic : Hallo
  • Indonesion : Assalamu alai kum
  • Italian : Buon giorno
  • Japanese : Konichiwa
  • Lithuanian : Labas
  • Mandarin: Ni hou
  • Mayan : Ba’ax ka wa’ alik
  • Mohawk : Sekoh
  • Navajo: Ya at eeh
  • Norwegian : God dag
  • Persian: Salam
  • Polish : Czesc
  • Portugese : Oi
  • Romanian: Buna Ziua
  • Russian: Zdraustvuite
  • Samoin : Talofa Lava
  • Serbian : Zdravo
  • Slovak : Dobry den
  • Slovenian: Zdravo
  • Spanish: Hola
  • Swahili : Jambo
  • Swedish : God dag
  • Tagalog : Magandang tangali po
  • Turkish : Merhaba
  • Ukranian : Pryvit
  • Ute : Mique
  • Welsh: Bore da

These are our simple acts, hope you can enjoy some too. We will share how these go. Thanks for reading! Wishing everyone a good week with love and all best wishes,

Grace and Linus xxxxxx

This blog is also in memory of Neil who worked for Refugee Week for many years. In love and light xxx

http://www.freepressseries.co.uk/news/latestnews/8197881.Tributes_to__passionate__human_rights_worker_from_Cwmbran/


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The Breaks

So sometimes things are very hard, and it can feel like happiness is very far away, possibly somewhere under all the rather massive amount of pain. Yet there are the breaks, and these are the things that help me to keep going. I try not to hold onto them, because we learned in mindfulness meditation (http://breathworks-mindfulness.org.uk/) that trying to hold onto pleasure and push away pain makes things worse. I am just accepting how things are now but using these moments to remember that even though it may not feel it there will be good days again and that there are things that can break though the deepest pain with hope and joy.

The breaks, I only know mine, but I am thinking that we all have them, but they are different for each of us, it just takes the noticing of them and recognising the wonder. It can get buried under everything, everything pain/tired/ lists/food/bills/people. This is what I mean by The Breaks:

by Grace

So I had a migrane, a bad one with all the visual symptoms, auras and nausea etc, but it was sunset and I could tell from inside that it was beautiful and wanted to go out and see it. So L took me out and it was worth it. I could hardly look at it, this picture was taken with me closing my eyes and holding the camera up and squinting into the viewing bit to see if it was about right and clicking it! A part of me was upset as I wanted to sit and cwtch with L in our garden and enjoy the beautiful sunset together, and I couldn’t. Then I thought, well, I am aren’t I? I am outside, with L, and I am really enjoying and appreciating the beauty of this and the reflection and blessings of the Divine within it. Yes it is through a big blur of pain but I am still doing it. I could lie inside and not try and go out and enjoy and then I would have missed this and it is beautiful. Perhaps this is it, doing it anyway, to the best of my ability and enjoying it and being grateful and knowing that a. a few years ago I would never have been able to do even this and b. lots of people can do all this and more and don’t and for whatever combination of reasons the beauty of this sunset draws me and fills me with a joy and peace and gratitude and celebration for this earth and my being on it and my whole crazy, gorgeous, mixed up, beloved life and that is a big big blessing. I am able to feel all this and recognise it and feel it every day and notice all the joy throughout every day if I want to and I do.

The idea about The Breaks clarified for me recently. It was about 4am and I was very sick L was helping me and I happened to look out of the window and see the sunrise through the trees behind our house and it was so beautiful, the whole great sky filled up with pink and blue. I thought wow, and for that moment I wasn’t there with the pain I was there with the sky. And that moment, it was like it included in it a whole rest, and when I came back to me I could manage better. That is when I thought, its the Breaks, the moments, and sometimes they are good enough they make all the hardest times worth it. An amazing sunrise on the morning after a night of so much pain – these are The Breaks.

God of life, there are days when the burdens we carry chafe our shoulders and wear us down; when the road seems dreary and endless, the skies gray and threatening; when our lives have no music in them and our hearts are lonely, and our souls have lost their courage. Flood the path with light, we beseech you; turn our eyes to where the skies are full of promise. – Saint Augustine

(From Prayers of the Saints: An Inspired Collection of Holy Wisdom, ed. Woodeene Koenig-Bricker – San Francisco: Harper Collins, 1996)

The sunrise was my sky full of promise, and I am keeping my eyes upon it. I wish hope and skies of promise for all who read this.

Other Breaks include lovely post and lovely text messages, phonecalls, emails, messages, comments, blog views! So if you send me (or anyone)  those then you are a super special part of the Breaks and the love in this Universe and you deserve lots of love and thanks and a yummy green juice and you can add a bit of apple in as a big treat! Thank You for all of these!


Here are some pictures of some recent very loved and helpful Breaks:

by Grace

Lovely post! We love, love, love post and love sending it too, and soon though Healing Boxes Charity we will, we hope be able to get lots of lovely post out to lots of people in need. Post makes my day.

by Grace

Normally I love my wheelchair, to me it is the freedom to go places and do things I could not do otherwise, and it is a totally wonderful sapphire blue shiny one! However sometimes I get fed up with having to use a wheelchair and get a bit grumpy, so what is the solution? Add wings to your wheelchair!

by Grace

Two collared doves live in the tree in our garden, they are so lovely and watching them and spending time with them uplifts me, if only for a moment, and its the moment that holds an age and an acre of peace within it and its the moments that count.

by Grace

Rainbow Candles! How exciting, aren’t they sweet, they came in the suma order (http://www.suma.coop/contact-us/). I kept the box open all day as they are so pretty and cheery. Now if we say ‘we are lighting a candle for you’, you now know that it is one of  these hand-dipped fairtrade vegan candles full of love and rainbow fun! :-)

By Linus

L bought me from his budget the lovely shea butter (http://www.naturalcollection.com/products/ruby-red/ruby-red-organic-rose-shea-butter-200ml/) that I wanted but couldn’t afford from my budget, and gave it to me on a day when I especially needed cheering! Big yay and hugs to him.

by Linus

There was a mouse! A mouse! Outside Grandmas, so exciting, we love mices to pieces :-P

This poem to me is relief from pain, I know that isn’t what it is about but I read it after particularly intense pain flare and it described perfectly how, to me, the relief from pain feels:

EVERYONE suddenly burst out singing;
And I was filled with such delight
As prisoned birds must find in freedom,
Winging wildly across the white
Orchards and dark-green fields; on—on—and out of sight. 5
Everyone’s voice was suddenly lifted;
And beauty came like the setting sun:
My heart was shaken with tears; and horror
Drifted away … O, but Everyone
Was a bird; and the song was wordless; the singing will never be done. 10

- Siegfried Sassoon (1886–1967)

I know that this poem isn’t about illness but basically I think that when we read we all in some way identify or not, we all make our own reading of every poem within our own framework of knowledge, preconceptions and life circumstances. This poem fits well with lots of difficult situations and it has brought me comfort and so I include it here. I hope it can inspire your life through your individual reading of it. If you want to read the authors commentary on the poem and why it was written you can find it here: http://wonderingminstrels.blogspot.com/2001/08/sometimes-sheenagh-pugh.html

Sometimes

 Sometimes things don't go, after all,
 from bad to worse. Some years, muscadel
 faces down frost; green thrives; the crops don't fail.
 Sometimes a man aims high, and all goes well.

 A people sometimes will step back from war,
 elect an honest man, decide they care
 enough, that they can't leave some stranger poor.
 Some men become what they were born for.

 Sometimes our best intentions do not go
 amiss; sometimes we do as we meant to.
 The sun will sometimes melt a field of sorrow
 that seemed hard frozen; may it happen for you.

– Sheenagh Pugh

Please don’t misunderstand, I am very happy and cheerful and love my life, it can be superhard though, and these are the things that help.

I am not saying anything new or profound, just writing about the Breaks that come to me because they are so divine and so much bigger than me I think they deserve to be shared. I have read about other peoples Breaks in the past and they have inspired me and reminded me to go inward and look. (e.g. a few off the top of my head here “In meditation, you are the spaces in between the stars, the peace” – Linus, “We get it, we are living it, I get it you get it, we all doing it, yeah!” – Kaydee Buggs, “She scrambled over the river rocks and I laughed …We saw GOD in the sky: two hawks playing and mating and soaring in the pale blue sky.“- Callie Wheeler, http://basicmissions.com/?p=25. I keep the inspiring things I am blessed to come across and create inspiration scrapbooks which I love, I suppose this post is an online inspiration scrapbook:-)) I would hope that these might inspire someone to notice the good and do gratitude too. I don’t think lots of people read my blog to be honest, but if this reaches one person that is all worth it. I know this is far from unique, lots of young women are blogging about their experiences with chronic illness and that is great. It can be so isolating so the more support and openness and information that is shared that is one less thing that disabled people, information and support can be so empowering. Please feel free to share your “Breaks”, I would love to hear them and could add them here if you would like, we can make an inspiration station :-)

I think that we need to note these things so they don’t drift under everyday life. This is living mindfully and in gratitude and awareness for me. Thank you for sharing it with me. Wishing you good days and joy,

Grace and Linus xxxxxxxx

All words and pictures belong to Grace unless otherwise stated. Copyright.

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National MS Day

Inspired by a post by dear Callie at Basic Missions www.basicmissions.com I am blogging today for National MS Day. Please do go to Basic Missions and read the article there which is very informative and has practical things we can do to help and is written by people who are living and managing and thriving with these challenges daily so they know what they are talking about.

I of course do not! I do not have MS, I have (among other things) M.E, but many of my symptoms are similar. And I know how much of a challenge they can be. So I am posting here also about some things we have found useful about managing these symptoms and their effect on our lives over the years. I know I may be talking to people who already know all this and more (and if that’s the case, please, we always want to learn, share some tips with us! )but I think I didn’t use to know all these things, at some point either someone had to tell me or we worked it out through living and managing and finding creative ways to overcome. Because really, if I had listened to the social worker who told me I was unfit to do anything at all in the world, because I am so ill and so limited, physically and coginitavly then well, I wouldn’t be typing this today and possibly raising some awareness and helping some people.

I am aware that this will not be as well written as I would like it to be.

Writing this is my resistance. Writing this, when I know it is not what it could be, when I know what I used to be able to do, yet I am still here, still turning up at the page, writing and living, even though I am not what I could be. I am writing and that is something. It is strong. I am writing even though it is not everything I want it to be. I will not let the pain take this away from me. If I was not ill then I would not have had the experiences I have had that have lead me to this place. And so many of them have been fabulous. I love my life. I think my life is better now, even though it may be filled in many ways with pain, I see so much beauty. I get scared and ill and my friends get scared and ill and some have died, and then we are all sad and scared together, but truly I have never known such wonderful, inspiring and strong, loving people and I am so blessed to be part of these circles of wise and real women. We live every day. We know how lucky we are. We know about coping from moment to moment and breath to breath, and I know that what I am writing now is something. I could just lie here and say ‘I am ill, too ill, I can’t do it right” or I can turn up here and reach out and LIVE and maybe it’s not what it could be and maybe I can’t access the thoughts, the parts of my mind in which I know what I want to say and how, where all the words and memories and concentration and understanding that I can’t get to any more are kept but sometimes some of them shine through. All the love and the hope and the joy in which I live shines though. And I am grateful. I am here now.

Ok, we are trying to get through the brainfog garbel here, breathe, ok:

Tips and hints and practical things that have helped us and hope they help some other people too:

Sitting and Lying Down: http://www.survivingsevereme.com/sitting.html

This is brilliant, wonderful Clare Wade and so helpful. This book has been a lifesaver to us, really, it was the only thing we could find published on severe M.E until recently. There is, I think, lots of useful info for people with many chronic illnesses. We have sent it to people with spinal injuries, canser, surgery, fibromyalgia and other conditions and have had great feedback. Clare Wade wrote this when she was so ill she could only dictate a line a day or so to her carers, it has made our lives os much easier, what a triumph, thank you Clare!

Pain management and general coping: http://breathworks-mindfulness.org.uk/

We had done a lot, believe me, a lot of mediations and visulizations and coping methods for pain and general – I am ill and in lots of pain and stuck in bed and bored and too tired to move, turn over, sit up, eat and would much rather be better or take a break from my life – type feelings and we have found breathworks, the course, C.Ds and the book very very helpful. They explain how you don’t have to manage a lifetime of pain, just this moment, and we can manage a moment. Pain is so much more fluid than we imagine, even in my worst screamy pain there are moments when it slightly lessons, or will lesson. You can download the meditations from the website. Yay breathworks!

Platypus: http://www.amazon.co.uk/Platypus-Big-Hydration-Pack-Litre/dp/B001BNDKPM

Having tried all the options for drinking lying down we have come to the conclusion we like this the best. Cups and mugs I tended to drop – pain / exhaustion/ muscle wastage can do that to a girl, L coming to hold cup and straw every two seconds was impractical. As for the ‘leak proof can be used upside down drinking cup for disabled adults’ the occupational therapists gave us, the lids fell off when you used it and spilled all over me. Sports cups with lids and attatched straws one has to be able to lift and leak if left on the side on the bed. Baby cups, spill proof tippy cups I couldn’t get anything out of as I am too old to have the suckling reflex – goodness those children must be stong, I couldn’t get water from the cup at all! So after much trial and error we found the platypus. You can use it lying down, you can measure how much you drink, easy to clean, holds lots, doesn’t leak on the bed. You don’t have to suck hard. If you were to roll on it it would not burst, they can stand lots and lots.  Easy to get to your mouth on bad days, much more dignified than other things – these are cool – athletes use them – we are wellness warrior we use them too! O.T’s in our area are now telling other people about them they are great! :-)

Apron: for help at mealtimes; much nicer than a napkin tucked in, or worse, not that anyone ever tried to, a bib! aprons are smart and cool and don’t make me feel as sick. L bought me mine, indigo organic hemp. It came all the way from America to Wales and is super special and my fave colour too. Thanks to http://www.amazon.co.uk/Selfish-Pigs-Guide-Caring/dp/0954423313 for this great tip. Amazing book by the way, best caring one we have read!

Brainfog: what can I say about it? Work out codes – taps and words you tend to use. Linus had become fluent in the amazing brainfog guessing game. So he knows what I want even when I can’t get the words out or work out what I want myself. A basic list of – things that are good when times are bad is useful. Favorite foods to suggest and distractions (We love Harry Potter too, we have it on audio, best thing ever) also Bill Bryson, stories, gentle music – http://www.youtube.com/watch?v=q-0Qo6aKYvY You learn to think around things. So what is ‘ the things, the things, white, make the ceiling up’ would be the walls and ‘nip and hee owie’ would be much hip and knee pain please make it stop now! We are so lucky to have our animals who keep us going. When we spend lots of time as I do and Linus looking after me stuck in the house (bed or on sofa) ill it can be very boring but its ok we have our own little world, with 100 names for the guineas, their own theme tunes (with dances), what kind of cars they would be if they were vehicals (humphrey would be a little tank).

Linked to brainfog is the memory loss, which leads me to, lists and lists and more lists. Journals and so many photograps. I have such memory loss that we record my life all the time. It helps actually. and it inspires me. A friend said to me, ‘ why would I journal, I am sick I sit in the house every day and do nothing’ I said that isn’t true, I expect you have so many achievements, joy and excitements every day. E.g today. Extra lovely juice, persevering with meditation when it was so hard. Managing yoga even if it was about 5 hours after I set out to begin, managing to eat 3 sandwiches, taking my vits without vomiting, exciting post and emails – wow loads!

And yes their is fear and worry and anger but there are good days and bad days and I many spend most of my life in this room but we decorate it and cheer it up – currently glow in the dark star studded paper circles on ceiling, bunting and cloth over the walls for my birthday and a little stand on my table I can put cards/ pics/ affirmation cards/ photos in daily. And always wear body glitter! I may not be able to dress/ look as I would love to but even in bed I wore body glitter daily it cheered me up, sparkly arms, sparkly smile :-) http://www.lush.co.uk/index.php?

page=shop.product_details&flypage=flypage.tpl&product_id=30&option=com_virtuemart&category_id=479

Disability ‘Ettiquette” – people just don’t know what to say, I found this and they only thing stopping me handing it out in the street to everyone who is rude to us is my grandma saying I really really musn’t it would be too rude to do that. Well here it is a guide on what to say and not to say…and just so you know. http://www.barking-dagenham.gov.uk/6-living/accessibility/etiquette/etiquette-menu.html

Diet – now I could write so much on this, but there are people much more knowelgable than me who have said it much more eloquently so here they are: Kris Carr, http://crazysexylife.com/, Buellers Guide, Buellers Healthy Booty Camp: http://www.wellsphere.com/healthy-eating-article/bueller-8217-s-healthy-booty-camp/898269, David Servan Schreiber, http://www.amazon.co.uk/Anticancer-New-Life-David-Servan-Schreiber/dp/0718154290/ref=sr_1_1?ie=UTF8&s=books&qid=1274906495&sr=8-1

Alkeline and anti inflammatory green juice loving supergoodness :-)

Blessings – if you pray, please join us in sending whatever it is you send, prayers, love, healing vibes, thoughts, Reiki, best wishes etc to everyone affected by MS today, those living with it and their families, partners, friends and so forth. Not just today but all days sending love and support to eachother as we survive and thrive in this beautiful but sometimes painfilled world.

Some prayers/ poems I love:

Oh God make me brave.

Let me strengthen after pain,

As a tree strengthens after rain,

Shining and lovely again.

As the blown grass lifts,

let me rise,

from sorrow with quiet eyes,

knowing that thy way is wise,

God make me brave.

Life brings such blinding things!

Help me to keep Thee in sight,

Knowing all through my night,

That out of dark, comes light.

Dorathy Brandt Ford

There are moments when wellness escapes us,
moments when pain and suffering
are not dim possibilities
but all too agonizing realities.
At such moments we must open ourselves to healing.

Much we can do for ourselves;
and what we can do
we must do --
healing,
no less than illness,
is participatory.

But even when we do all we can do
there is,
often ,
still much left to be done.
And so we turn as well to our healers
seeking their skill to aid in our struggle for wellness.

But even when they do all they can do
there is,
often,
still much left to be done.
And so we turn to Life,
To the vast Power of Being that animates the universe
as the ocean animates the wave,
seeking to let go of that which blocks our healing.
May those
whose lives are gripped in the palm of suffering
open even now
to the Wonder of Life.
May they let go of the hurt
and Meet the True Self beyond the pain,
the Uncarved Block
that is our joyous unity with holiness.
May they discover through pain and torment the strength to live with grace and humor
May they discover through doubt and anguish the strength to live with dignity and holiness.
May they discover through suffering and fear the strength to move towards healing
From a poem by Rabbi Rami Shapiro.
I know these won't speak to everyone and I hope they do not offend anyone but I love them and they have helped me. Please do not misunderstand me. I am not saying that we were 'sent' these conditions as lessons to make us better people, or that its all worth it if we come out of it stronger. We may use these circumstances for better things but that does not, according to me, ever mean that it was all worth it or that a non disabled person can point and say well 'you needed it to teach you whatever'
It helps me to remember sometimes even in the worst moments, that it won't always be like this, good days will come again, bad days too but we are focusing on the good and all the wonder in our beautiful lives. I hope something hear has helped you. Please enjoy the Basic Missions post that inspired this basicmissions.com and please feel free to comment and let me know what you think or any tips we can add.
With love and best wishes
Grace and Linus and animals xxxxxxxxxxxxxxxxxxxxxxxx
All words and pictures copyrighted and belonging to msgracewales unless otherwise stated. 


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Thank you and Yay!

Hello,

What a fabulous party! Thank you to you all, you made it a super special day! Hope everyone enjoyed the long distance party. We have been getting wonderful feedback. Fantastic day. Our party here went beautifully thank you. Am still recovering from it, picnicking in the woods takes lots of energy! So this will be brief, but I wanted to say 100,000 thank yous to everyone. Here are some pictures from peoples celebrations. If you would like us to post your pictures please email them to me. You can comment on here if you don’t have my email and I will send it to you.

On to the pictures:

The wonderful Denise, Kimmi and Krysta in Colorado, U.S.A

All pictures belong to Denise

Thank you for your sensational celebration!

Here are lovely Toshikos pictures :-)

Pictures belong to Toshiko

Toshiko is in Japan. Here is the accompanying info she sent. Hope you enjoy!

“On the 3rd of May, this year, it was a little bit cloudy and windy at the beach, but warm with sunshine.
I went out to my favorite place before the sunset.
Those photos were taken here.
http://maps.google.com/maps?f=q&source=s_q&hl=en&geocode=&q=Enoshima,+Fujisawa+City,+Kanagawa+Prefecture,+Japan&sll=35.304199,139.480963&sspn=0.033552,0.071669&ie=UTF8&hq=&hnear=Enoshima,+Fujisawa+City,+Kanagawa+Prefecture,+Japan&ll=35.301537,139.481049&spn=0.033553,0.071669&z=14

The place is called Enoshima island. It’s in my hometown, Fujisawa city. You can zoom out the map and see where I am in Japan.
The island is one of the popular sightseeing spot. The 3rd of May is a national holiday, which is Constitution Memorial Day, so there were many people.
When the sky is clear, you can see Mt.Fuji which is the symbolic mountain of Japan just next to the sun. (I can see a vague line of the mountain, though)
The other photo is the island from the other side of the bridge.
There are some shrines in the island dedicated for one of the seven gods for good fortune (Shichifukujin), and also there is a legend that a dragon flied down to this island.

This is the view from the other side of the continent on your birthday in 2010. It was 6pm here, so 12pm your place.
I hope you like them!!

Your friends, Toshiko xoxo”

Toshiko’s birthday was the 4th of May so this was really a joint celebration for her too. And happy birthday to Lucy for the 5th too! Thanks Toshiko for this! *hugs*

At Cwmcarn we had a great time.

Lovely day, lovely people, lovely forest, lovely food and lovely prezzies too! Thanks so much for everyones lovely comments. I will do my best to reply to them, but if I haven’t yet, know that I have not forgotten you, and I am thinking of you.

Okey dokey pictures:

Vegan Picnic at Cwmcarn

All pictures belong to Grace unless stated otherwise

More picnic fun

All pictures belong to Grace unless stated otherwise

Information Station, M.E Awareness, vegan and ethical living info.

Can you spot people wearing awareness ribbons in the other pictures?

All pictures belong to Grace unless stated otherwise

Make a Wish!

The birthday cake is made by darling Linus, and is 100% raw vegan organic healthy yummy goodness!

Email if you want the recipe!

All pictures belong to Grace unless stated otherwise

Turning 23!

On this day 23 years ago I was born, weighing 1 pound and 13 oz.

All pictures belong to Grace unless stated otherwise

Linus’s decorations…

All pictures belong to Grace unless stated otherwise

“Its my birthday, its my birthday, its my birthday!”

Giddy with excitement – can you tell from the picture? Lol!

NB. also featured are my lovely AYME Teddy ‘Denny’ from the AYME Teddy Team *thank you* www.ayme.org.uk

and my wonderful Project Linus quilt that AYME nominated me for. *Thanks and hugs* http://projectlinusuk.org.uk/

All pictures belong to Grace unless stated otherwise

Hope you have enjoyed these pictures, and that you all enjoyed the day. I am so excited to see the blog is still getting views even though the long distance party is over for this year. *Ok I am going to be brave and ask* Would anyone be interested in me continuing this blog with articles about living and thriving and healing with health challenges? Topic example that occured to me recently e.g:

Today we decorated our ceiling and other ways to cope

I spend most of my time lying down resting, so I look at the ceiling a lot, and as fabulously absorbing as the artex patterns are, we needed something more. So its a how to; inspirational ideas on decorating your ceiling and your house – because if you are in the same room mostly, it can get boring, but its just how you look at it, and what you are looking at! (This is not to pretend that being ill is superfun. Having a cool ceiling does not take away the difficulties, we are not doing denial here but positive ways of managing the challenges we are all living with day by day.)

That isn’t the best of intros but I am not at my best and brightest today. Let me know what you think. I can continue if people do want to read it, or just squirrel all the ideas away for use another time if you don’t. If you want to you can leave a comment and tick a box which subscribes you to updates, new posts or when I reply to your comment etc.

Lots of love and hugs and happy birthday girl best wishes and thanks to you all

love, Grace and Linus and family xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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